“We all have our own unique quirks and traits,” writes Courtney E. Ackerman MSc, she goes on to say: “we all have our own preferences and style for sharing pieces of ourselves with those around us.”
Self-expression for the disabled is just as important and can be just as creative and beautiful as it is for society in general. Social and emotional outlets are needed due to the psychological stereotyping of disabilities and the desire to be so-called ‘normal’. Self-expression provides the opportunity to experience a feeling of cultural normality.
Self-expression is something we are all aware of, it is at the core of every human being,and it is important not only for adults but children as well to have the freedom to self-express. The importance of self-expression should not be underestimated in society. Self-expression can take many forms. People may express themselves through words, facial expressions, body positions, movements, clothing, actions, and the arts.
In her article for positivepsychology.com Courtney Ackerman remarks: “How we share and express ourselves to others forms the basis of our personality, as understood by everyone but us, and sets the tone for our entire lives. It’s a vital aspect of life to pay attention to, especially if you want to feel more understood and more in tune with the people you care about.”
Furthermore, Ackerman goes on to comment: “The way that we share ourselves is known as self-expression, and it turns out there are a lot of ways to do it.”
As we celebrate the 30th anniversary of the signing into law the Americans with Disabilities Act (ADA), it seems like the perfect opportunity to point out that the term disabled is in so many cases misleading. It seems appropriate to appreciate that all people are equipped with varying abilities, strengths and weaknesses, and hidden talents which are often used for self-expression.
Before the ADA people living with disabilities were often minimized or ignored. There was little value placed on self-expression by the disabled. In the past 30 years, society has slowly begun to appreciate the feeling and ideas that were previously suppressed.
The Arts of the Past
It was not that long ago in human history that a person with a disability had few possibilities of self-expression. The few opportunities available were limited to that of being a sideshow ‘freak’ such as in the case of Charles B. Tripp. His talents ad skills may have been overlooked if not for P.T. Barnum and Ringling Brothers.
Throughout history, there have been numerous, famous, talented people with a disability who accomplished amazing works in all forms of the Arts. Below is a small list of those exceptional people:
Michelangelo: according to the Passionate People Team: “Experts disagree whether Michelangelo had gout or osteoarthritis. But either way, the famous painter and sculptor recorded that he had significant trouble using his hands.”
It has been claimed that the artist suffered from chronic kidney stones which would point to gout, but regardless, the artist continued his work with hammer and chisel as well as paints until he was nearly 89 years old.
Vincent Van Gogh: was believed to be bipolar and affected with bouts of depression. Of Van Gogh, The Passionate People Staff report: “had temporal lobe epilepsy” they continue report: “It is believed that his physician, Dr. Gachet, prescribed digitalis to treat his seizures. One common side effect of this medicine is seeing yellow spots. Some historians wonder if this is why Van Gogh seemed to love to use the color yellow in his art.” Additionally, it is believed that Van Gogh was most productive during his manic periods.
The talents in the arts are not limited just to visual arts, music has its share of composers and musicians who refused to allow physical barriers to hold them back.
Ludwig van Beethoven: Although he lived more than a century ago, the music he wrote still resonates today. The impact this German composer has had a lasting impact on classical music. Lee Standberry notes: “In the 1790s, Beethoven slowly began to lose his hearing, but continued to play, compose, and conduct. Eventually, he became entirely deaf, yet he didn’t let his disability stop him.”
Stevie Wonder and Ray Charles: Switching to more contemporary music, Stevie Wonder and Ray Charles are considered legends in the world of music. Wonder was born blind, as a singer, songwriter, instrumentalist, and producer he first signed with Motown Records at the age of 11.
Since that time Standberry reports: “Wonder has been able to produce more than 30 top ten hits in the U.S. Ray Charles, Standberry tells: “plays piano, sings, and acts, all while being blind. Though not born blind, his eyesight started to deteriorate around age five, and he was completely blind when he turned seven.” Like Wonder, Charles also won several Grammy Awards and both men have won Life Time Achievement Awards and both were inducted into the Rock and Roll Hall of Fame.
Film and TV Performers
The performance arts have a remarkable list of diverse people who have overcome a disability and have gone on to successful careers and have entertained and amazed us for years. On stage and screen, though dance, portraying real and imaginary characters, these people have made their talent overshadow their challenges. It is impossible to do fair justice to these showmen but it is hoped some of the links supplied will shine a light on the skills they possess.
While growing up the farthest thing on my radar was an interest in the Arts especially dance and performing arts. Now as an adult I have gained an appreciation for visual arts, with interest in the works of people such as Vincent Van Gogh, Paul Rubens, Childe Hassam, William Merritt Chase, and other painters, but Performance Arts has never been in my field of vision. Yet through the studies of disabilities, the possibilities for self-expression offered by dance and stage performances are intriguing.
At first glance, there was a great feeling of admiration for the athleticism of the performers, the grace, and the flow of the movements. Watching You-Tube performances by Anjali Dance Company and Axis Dance Company one can easily become lost in the presentation and forgetful of the disabilities and, most importantly, the messages being conveyed through the performance. Performance art presented by the disabled portrays messages that are subject to the interpretations of the audience.
Personally, one of the more captivating performances comes from the National Theater of the Deaf or the Deaf West Theater. It’s hard to imagine a deaf theater performance, but the combination of hand movement, facial expressions, and movements are magical together. Through this performance of beauty and grace, there may not be a better example of self-expression.
The need for humans of all types to have an opportunity to self-express is part of our makeup. In the area of visual arts, maybe best exampled by considering Henri Matisse, who is considered by many to be one of the greatest impressionist artists. His desire for self-expression continued even when ill health prevented him from painting, in his final years he turned to paper cutting and collages and creating some of his most important works.
Stigmas and feelings of isolation have often been a constant companion for those living with a disability. Marija Bern of the Bored Panda web site staff wrote: “Around 10 percent of the total world’s population or roughly 650 million people, live with a disability according to Disability Statistics’ annual report.”
Bern continues saying: “From artists painting with their mouths to blind photographers – these disabled people are truly an inspiration. Living with conditions most can’t imagine, they often use this art as a way to communicate with the world.” The human need for self-expression becomes evident once one explores these works.
As mainstreaming increases, so to will come acceptance increase, and the desensitizing of cultures as they become increasingly familiar with people who are disabled. With each new generation as the previous one fades away, tolerance is increasing. Baby boomers are far more tolerant than their parents. The baby boomer’s children even more so, the acceptance and recognition of the abilities of the disabled and is far more acceptable now than for those of the World War II era.
It may be hard to believe that some of the most talented people deal with disabilities in their lives every day, living with and adjusting to situations the rest cannot imagine living with, yet have taken their talents and artistries and put them to use as a means of self-expression and to communicate feelings with the world.
With some guidance and encouragement and using a variety of methods, the results of these efforts are magnificent. Many of the artists paint with their hands, but others with their mouths or their feet. Many are blind or suffer from mental disabilities yet the drive for self-expression produces some of the most beautiful and intricate work anyone can imagine.
As the WebdesignerDepot comments on their website: “Their achievements are arguably epic in the face of the adversity that they face.
We hope that the artists in this post inspire your designs and make you look at adversity in any field as a surmountable obstacle.”
Bern, Marija. (2020). We Can’t Believe What These 37 Artists Can Do Despite Their Disabilities. Retrieved from:https://www.boredpanda.com/
Ableism is defined as, “discrimination in favor of able-bodied people.” Ableism is most often associated with disabilities, but it can also be applied to people who we call seniors in our society.
One question which may come to mind is, who set the retirement age at 65? The answer may be somewhat of a surprise. On his blog, Tim Kastelle posted, “The age of 65 was originally selected as the time for retirement by the “Iron Chancellor,” Otto von Bismark of Germany when he introduced a social security system to appeal to the German working class and combat the power of the Socialist Party in Germany during the late 1800s. Somewhat cynically, Bismark knew that the program would cost little because the average German worker never reached 65, and many of those who did, lived only a few years beyond that age. When the United States finally passed a social security law in 1935 (more than 55 years after the conservative German chancellor introduced it in Germany), the average life expectancy in America was only 61.7 years.” Today, after more than 80 years, the department of social security calculates,
“A man reaching age 65 today can expect to live, on average, until age 84.3.
A woman turning age 65 today can expect to live, on average, until age 86.6.”
Many of us spend considerable time planning for retirement at 65, but for many, it may not turn out to be all we expected. People come out of retirement for many reasons and in an article on The Street web site Kathryn Tuggle lists five of the most common:
“Pursue an encore career. An encore career allows retirees to pursue a profession that may boost their financial stability while also providing personal fulfillment.
Have a purpose. A recent Encore.org study revealed more than 4.5 million people between the ages of 50 and 70 are involved in encore careers. Popular sectors for these careers include public service, education, or other opportunities that allow people to give back.
Stay physically active. Very few people plan to retire and just do nothing. Oftentimes people who leave the workforce find that they not only miss the routine of having somewhere to be every morning but also crave the physical exercise associated with climbing stairs, walking around the office, or traveling to meetings and conferences.
Understand your financial need. Some retirees may not need additional funds for themselves but may go back to work due to unexpected family expenses.
Keep the mind sharp. Doctors recommend that retirees keep their minds active to avoid premature memory loss. According to the Center on Longevity at Stanford University, work plays a key role in keeping the mind functioning optimally.”
So does being past retirement age mean we have no longer have value in the workplace? Maybe we should be asking that question of former President Jimmy Carter, who, now in his 90’s, is still active in “Habitat for Humanity,” while fighting cancer, and if that wasn’t enough still remains politically active. Or maybe we might want to consider the late professor Stephen Hawking who passed away at 72 and despite his age and a debilitating illness, continued teaching as well as working on his theories relating to the universe. These are just two famous examples of why hiring practices need revision. No one knows how much talent and knowledge has been lost due to the practice of ableism. These underutilized workers are a potentially untapped resource of talent.
The US Dept. of labor posted the following information relating the employment rates for people with a disability:
April 2018 Disability Employment Statistics Ages 16 years and over
Labor Force Participation
People with disabilities: 20.9%
People without disabilities: 68.3%
People with disabilities: 8.0%
People without disabilities: 3.5%
It is important to recognize that what is missing in these statistics is the number of talented individuals with a disability who have simply given up trying to find work or are forced to rely on family members to subsidize what they receive from social programs. In his book, Hidden Talent, Mark Lengnick-Hall wrote: “Most people with disabilities want to work. Sixty-seven percent of people with disabilities who are unemployed say they prefer to be working” (p. 3)
On their website, the Pew Research Center states: “As the year 2011 began on Jan. 1, the oldest members of the Baby Boom generation celebrated their 65th birthday. In fact, on that day, today, and for every day for the next 19 years, 10,000 baby boomers will reach age 65. The aging of this huge cohort of Americans (26% of the total U.S. population are Baby Boomers) will dramatically change the composition of the country. Currently, just 13% of Americans are ages 65 and older. By 2030, when all members of the Baby Boom generation have reached that age, fully 18% of the nation will be at least that age, according to Pew Research Center population projections. But don’t tell Baby Boomers that they are old. The typical Boomer believes that old age does not begin until age 72”.
What is interesting is that one of the concerns with this mass retirement is the possibility of a business Brain Drain. By Brain Drain, we are referring to the loss of those skilled employees who have experience and have been successful at their jobs. They are a potential resource.
When exploring the potential of employees, perhaps one great loss to the workforce and society is the 60%+ people with disabilities who are unemployed. Approximately 1 in 5 Americans or 20% of the population has a disability. Lengnick-Hall states: “72% of working people with disabilities have high school diplomas or a higher education. However, of those with a college degree, 55% are unemployed, compared to 14% of college-educated people without disabilities.”
Why don’t more employers hire people with disabilities? Some of the reasons are based on ignorance, some are based on stereotyping or prejudice. Many of the reasons date back to the industrial revolution where the value was placed on physical abilities. The age of the assembly line brought long hours of strenuous work, and any sort of industrial accident resulting in a disability went unforgiven.
There are many negative attitudes or misunderstandings about hiring a person with a disability such as:
Many employers believe that hiring people with disabilities will result in higher costs in health insurance claims.
Employees with disabilities have more accidents at work.
Employees with disabilities are less productive compared to non-disabled employees.
There is an increase in sick time and a lack of reliability among employees with disabilities.
The cost of associated complying with accessibilities and job accommodations out weights the value of hiring such employees.
Many companies use the strategy of ignoring applicants with disabilities in favor of the non-disabled applicants. Lengnick-Hall warns: ”Of course the potential costs of such a strategy include getting sued for discrimination, loss of reputation in the community resulting in bad publicity, and perhaps loss of customers with disabilities who find other companies with whom to do business”. (p. 5)
The Jobs Accommodation Network (JAN) has been involved in ongoing research for many years and; “the study results consistently showed that the benefits employers receive from making workplace accommodations far outweigh the low cost. Employers reported that providing accommodations resulted in such benefits as retaining valuable employees, improving productivity and morale, reducing workers’ compensation and training costs, and improving company diversity. These benefits were obtained with little investment. The employers in the study reported that a high percentage (58%) of accommodations cost absolutely nothing to make ($0), while the rest of the accommodations made had a typically cost only $500”.
This all comes down to, in many cases, business just focusing on the cost of workplace accommodations, which is shown to be low cost, but have high returns. There are organizations out there like JAN that help employers with accommodation concerns and remind business owners that the ADA prohibits discrimination based on assumptions, stereotypes, or any myths or presumption an employer may have about hiring people with disabilities. Business also should be aware the EEOC is targeting these cases.
Before we can begin to have equal opportunity in employment it is important to realize that currently little is being done to cause effective change. The current efforts have done little to bring about change in attitudes and hiring practices. As reported by in Ability Magazine: “Numeric goals being set by companies to hire so-many of this type of person, and so-many of another type, work only to create a foundation for future failure”.
It may seem like a simple matter to hire people from a minority group, but it is a different matter to treat them the same as you would any other employee. The answer to this dilemma is to create an environment of inclusiveness, which is to include many different types of people and treating them all fairly and equally.
Working towards inclusiveness is not necessarily an easy task for a business to accomplish. Changing begins with management, they set the tone with trust and respect. From the start, business owners and managers must be ensured they want to create an inclusive environment for the right reasons. If the goal is only to appear as a positive and progressive business or to meet quotas, so as not to find yourself in court with the EEOC, failure will be the result.
However, referring back to the Ability magazine article: “if you want to truly be a part of a positive future, to benefit from the life experience and skills of all people, regardless of sex, gender or whether they have a disability, then your company will reap the benefits. Culture is key. To reach true inclusiveness, work toward cultural change to find the path to truly combat discrimination.”
The simplest step is to hire people with disabilities, but do it for their skills which your business can use. Following that then take the next step not just to meet any accommodations, but as with all employees, they are made part of the team and show thoughtful consideration and respect for them and their ideas and suggestions. Let their voice be heard.
One last comment from Ability magazine, which reports: “Companies that were the most inclusive of disabled persons attained 28% higher revenue, 30% greater profit margins, and twice the net income of their peers during a study period of 2015 through 2018.”
Not only can rethinking hiring practices the right thing to do, but as Mar Sagar wrote in his blog: “`doing the right thing’ can frequently turn out to be a profitable business decision.”
Now that the primaries are over it is time to begin preparing for the elections in November. As an important portion of the American voting population, it is vital that those voters living with a disability recognize that their vote is powerful and an important voice.
Voting, as Kay Maxwell defines: “Voting is a process by which a person or group of people expresses an opinion formally or officially”. She continues on to say: “voting usually refers to the act of citizens choosing candidates for public office or deciding on public issues and laws. In the United States, people vote at the local, state, and federal (national) levels”.
Historical Background on the Right to Vote
As a young country with a population of about 4 million people eligible to vote it seems only about .03% or 120,000 actually voted. At that time, voting was restricted to free white males who were property owners and who met particular religious prerequisites.
By the 1860’s voting rights became more extensive with nearly every state allowing all white males, 21 years old or older, voting rights.
At the end of the Civil War the 15th Amendment to the Constitution provided for voting rights for all men regardless of race. It would not be until the passage of the 1965 Voting rights Act that blacks truly gained the right to vote in the South.
After a long political fight in 1920, women won the right to vote with the addition of 19th Amendment to the Constitution. In 1971 the 26th Amendment lowered the voting age to 18 years of age.
It should be explained that prior to the Civil War voting was not private. People would vote by a show of hands or voice their choice out loud. The introduction of print ballots became popular after the war, but these were often in different colors and shapes which signified the different candidates. It was not until the 1890s that use of Australian ballot, where all the candidates were printed on one ballot by the government that voting became truly secret. For those living with disabilities voting rights, sadly, have been slow in coming. As records illustrated on the US Department of Justice website: The Voting Rights Act of 1965 (VRA) contains provisions relevant to the voting rights of people with
disabilities. The VRA requires election officials to allow a voter who is blind or has another disability to receive assistance from a person of the voter’s choice (other than the voter’s employer or its agent or an officer or agent of voters union). The VRA also prohibits conditioning the right to vote on a citizen being able to read or write, attaining a particular level of education, or passing an interpretation ‘test’ “.
The Voting Accessibility for Elderly and Handicapped Act of 1984 (VAEHA) was passed. This act required accessible polling places for federal elections for the elderly and individuals with disabilities. Additionally, voters are to be provided with alternate means of voting on Election Day.
The Americans with Disabilities Act (ADA) of 1990 provided protection for people with disabilities similar to those for individuals based on race, color, sex, national origin, age, and religious beliefs. The ADA title II requires State and Local governments (public entities) to ensure that people with disabilities have equal and full opportunity to vote. Title II of the ADA applies to all aspects of voting, including voter registration, site selection, and casting of ballots. This applies not only to Election Day, but during any early voting process.
The National Voter Registration Act of 1993 (NVRA) among other things, the aim is to increase the historically low registration rates among persons with disabilities. The act also provides for public assistance or state-funded programs that primarily serve persons with disabilities to also provide the opportunity to register to vote in federal elections.
The Help America Vote Act of 2002 (HAVA) requires jurisdictions responsible for conducting federal elections to provide at least one accessible voting system for persons with disabilities at each polling place in federal elections. The accessible voting system must provide the same opportunity for access and participation, including privacy and independence that other voters receive.
As of September 15, 2015 polling officials may allow those with a physical disability or a voter over the age of 70 to move to the front of the line at polling places if requested by the voter.
In 2020 Senator Bob Casey (PA) and Amy Klobuchar (MN) have introduced the Accessible Voting Act (AVA), meant to address the needs of voters with disabilities and to ensure they have equal access to the vote on Election Day and beyond. See: https://www.govtrack.us/congress/bills/116/s3206
You are Not a Second Class Citizen
On the CDC website it is reported that: “one in 4 U.S. adults-61 million Americans have a disability that impacts major life activities.” Yet according to the website www.aapd.com: “16 million people with disabilities voted in the November 2016 election.” That equates to approximately 26.3% of the American population living with a disability.
Despite all of the history of struggles for equality in voting and the resulting changes, the website governing.com finds: “voting among the disabled is on the decline.” In the face of all the important issues confronting all US voters in the past elections, it is disheartening that voter turnout for those who may be affected the most by many of these issues is on the decline.
What is causing this lack of enthusiasm? There is much speculation as to why voter turnout for the disabled is on the decline. In an article written by Matt Vasilogambros, he has found barriers or lack of accessibility and untrained poll workers are the biggest contributors. Vasilogambros quotes Michelle Bishop, a voting rights advocate, for the Nation Disability Rights Network who reveals: “under increasing pressure to oversee a smooth, secure election, untrained poll workers have discouraged the use of accessible voting machines, leaving voters with disabilities behind.” Bishop also recalls: “in the last election, for example, a voter called her to report that a machine was placed in the corner, turned off, with a flower wreath hung on it.” Bishop was believes: “The message is: You’re not wanted here.”
“A study by the Government Accounting Office (GAO), found that nearly two-thirds of the 137 polling places inspected on Election Day 2016 had at least one impediment to people with disabilities. In 2008 presidential election, it was fewer than half. The GAO also reported that State inspectors of voting accessibility had fallen nationally over the same time”, Vasilogambros wrote.
Vasilogambros goes on to disclose that: “Among the infractions: The accessible voting machine wasn’t set up and powered on, the earphones weren’t functioning, the voting system wasn’t wheelchair-accessible, or the voting system didn’t provide the same privacy as standard voting stations.”
The bottom line here is simple, it’s not that complicated. If you’re disabled, you are NOT a second class citizen, it’s time for you to speak up, voting is your right and so many issues apply to you. It is time for you to self-advocate, raise a stink, call your representatives and call the US Department of Justice to demand your rights, if, for any reason, you are unable to vote. Don’t just complain about the system or the people in charge if you’re not willing to do something. Remember so many before you fought for your rights; this year is the thirtieth anniversary of the American with Disabilities Act, let the world know, show them what you’re worth, make yourself known, it’s your turn.
U,S. Department of Justice, Civil Rights Division, Disability Rights Section (September 2014). The Americans with Disabilities Act and Other Federal Laws Protecting the Rights of Voters with Disabilities. Retrieved from: https://www.ada.gov/ada_voting/ada_voting_ta.htm
Growing up I was led to believe that at a point in our lives we would enter what is called the golden years. I have come to believe that whoever came up with this idea lied. They’re not golden, they’re rusted.
Not to be morbid, but as a realist, it is hard enough to be in the later stages of life where getting out of bed is sometimes a challenge, bending over to pick something up, walking and even our reflexes and thought processes begin to slow down. Many
of us begin spending time thinking about our youth, the way it was and begin thinking about our own mortality. Combine these factors with the thought of spending our remaining years in a nursing home being care for by strangers in unfamiliar surroundings is not an encouraging scenario!
Now that we are in the middle of a dangerous health crisis which seems to affect older adults more severely than younger people and will undoubtedly have an influence on the future life styles of our population, our aging choices become even more complicated. For those at a point in life where planning for the future anticipating those Golden Years, these decisions have become much more complex and if there is a family element to consider. Does the senior go to a nursing home? Do they move in with a family member? Or do they choose Aging in Place?
This article is not intended to endorse or discredit any one option; the intent is simply to try to explain one of the choices available.
Aging in Place
According to Seniorliving.org:
“Aging in place means a person making a conscious decision to stay in the inhabitation of their choice for as long as they can with the comforts that are important to them. As they age, these may include adding supplementary services to facilitate their living conditions and maintain their quality of life.
Aging in place refers to a person in their golden years when they can live in the residence of their preference and are still able to access the things they require and used to in their daily life.
Some people may confuse the issue by thinking that aging in place will fix the things that they may have or problems that may arise. Aging in place can only address those problems that have already been planned for in the person’s life. Aging in place challenges refers to the health, social and emotional needs an elderly person may need and such needs that can be addressed to help them maintain a well-rounded life, in the residence of their choice.
When to Start Planning:
Aging in place means a person being able to live in the place of their choice without losing their quality of life when they reach senior age. But ideally what aging in place should be addressing is not just to maintain the quality of life that the person is used to, but also to make it better whenever possible.
To live out later years as comfortably as possible, financial and economic plans should be put in place from your earliest working years. Although Aging in place refers to persons of retirement age, it should concern everyone as soon as possible from the earliest years of one’s career. Plans for retirement should thus be created as early as possible and changed, revised and adjusted according to changing needs and requirements.”
There is no place like home:
For a great many people the prospect of spending their remaining years in their own home has tremendous appeal. The U.S. Centers for Disease Control and Prevention defines aging in place as: “The ability to live in one’s own home and community safely, independently and comfortably, regardless of age, income or ability level.”
As one begins to think about retirement planning, the home one chooses to live in should be part of that planning. Be Pro-Active may be the best advice anyone can give.
When considering aging in place, a key amount of the planning strategy has to include the age of one currently owned home.
The median age of homes in the U.S. is approximately 37 years old, depending on what area of the US you live in. Homes in the Northeast have the oldest median age; approximately 57 to 58 years of age. The youngest areas, such as Nevada, Arizona, New Mexico, Texas, may average 20 to 25 years old.
38% of sales are to 1st-time buyers; with a median age of 31 years old.
The American with Disabilities Act was passed in 1990. (29 years old)
This means that because so many homes were constructed before passage of the Americans with Disabilities Act planning to renovate in many cases becomes more complicated. Planning for this scenario will be required before evaluating if remaining in your own home is the best and safest option.
It may seem obvious to most, but one of the critical elements in being pro-active in planning for senior years is health. We all hope to remain active through our ‘Golden Years’, it doesn’t always happen as we would wish.
Someone once said ‘youth is wasted on the young’, and as we age one may discover deterioration in our vision or hearing. Or perhaps our mobility isn’t entirely what it should to be and one may find balance less than it was a few years ago. As if all these possibilities weren’t enough, our joints and muscles fail to operate as smoothly as in our younger years and because of the possibility of memory loss we are really not exactly sure when our joints were not uncomfortable to move. The majority of these prospects sound unappealing but these are normal processes as we age. Regardless, even in the case of a more unfortunate extreme health change, by being pro-active in home planning the opportunity to remain at home is still possible. Below are just a few examples:
In the case of decline in vision: are all controls clear and easy to read, such as the knobs on stove and oven. Is there ample lighting, especially on stairways?
When discussing stairways there are multiple considerations. For those who are dealing with mobility challenges stairs are always obstacles to overcome.
In addition to stairs, throw rugs, uneven flooring, cords, objects on the floor and many more factors related to movement have to be compensated for.
Door knobs and faucet fixtures should be the push/pull type rather than the twist variety.
Tubs/showers must be addressed. Are they too high or is there a zero clearance shower. Have grab bars been installed and a high rise toilet?
These are only a few of the factors that will need to be weighed when considering aging at home. If you are remolding before planning on retiring, it would be best to hire a builder familiar with accessibilities and you may want to first check with you local office for the aging, public health office, local senior center, AARP or your regional independent living center for more information.
There are many choices as we age and aging in place is just one. Each individual is different as are health needs and housing requirements. There are many options to explore, but a few things are certain, we are all aging and, according to the National Institute of Aging:
More than 3 in 4 people — 77 percent want age at home.
36 percent plan to modify their homes to enable them to stay in a familiar, safe environment as they age and we will all face these options someday.
Consider the shortage in long term health care facilities, as shown in the table:
Bearing this shortage in mind and the projected increase in senior population and the aches and pains you may feel getting up in the morning, it is reasonable to draw the conclusion that it is never too soon for a family to begin planning and being pro-active for those ’Golden’ years. Maybe aging in place is right for you.
One final note; it seems it was a moment ago my wife and I had our first child. I blinked and now we have three children and my grandson is graduating high school. It all happens faster than you can imagine so it is never too soon to begin thinking about your later years.
Growing up, everyone who knew my father considered him Iron Man and the one who would definitely be the last man standing among our family members. He was a big guy, physically strong, and although he never finished high school, had more common sense than anyone I have ever met. He could build anything, loved the outdoors, especially fishing, and possessed a kindness and understanding which he put a great deal of effort into hiding.
Later in his life he began to have a little trouble remembering things. These hiccups in his memory progressed to the point where he would confuse me with my brother and mixed up his grandchildren’s names. Perhaps the strangest occurrence was when he took my mother to play bingo one evening and when it came time to pick her up, he wasn’t there. After calling the local police, he was found just driving around the city with no idea where he was going. He wasn’t lost or driving recklessly he just out driving.
Conversations with him became more and more difficult, he would drift off and begin talking about events which took place during his youth.
For many of us, the people we have always known suddenly begin to change or disappear. Where to they go? Why? What is happening? What are the signs they are leavings us?
I am just one of the millions of Americans who was forced to come to terms with an older relative afflicted with Dementia. What is happening to these people we care about can be confusing and unsettling.
Dementia is an umbrella term used to describe a decline in memory or brain function that impacts an individual’s daily life. This is different from the normal decrease in short-term memory most people experience as they age. Dementia is caused by changes in the brain which impact cognitive function, and it can be associated with types of dementia many of us are familiar with, such as Alzheimer’s, Parkinson’s, and Huntington’s disease. There are a number of causes and different type of dementia. For additional information, visit: https://www.dementia.org/causes
According to the website Dementia.org, there are seven stages of dementia and they state, “in most cases, dementia is irreversible and incurable. However, with an early diagnosis and proper care, the progression of some forms of dementia can be managed and slowed down”.
As the Dementia.org website also points out: “Learning the stages of dementia can help with identifying signs and symptoms early on”. This knowledge can assist those affected with the early stages to get proper care and can aid caregivers in understanding what to expect in future stages.
Stage 1: (stages 1-3 known as pre-dementia stages)
Normal functioning stage.
Patient doesn’t show noteworthy memory problems.
Stage 2: Age Associated Memory Impairment
Occasional forgetting where an object was placed.
Forgetting familiar names.
Although this is common as a normal part of the aging process, this decline in memory can be an early sign of degenerated dementia.
Stage 3: Mild Cognitive Impairment
This is the stage where clear reasoning problems begin to manifest themselves.
Getting lost easily.
A marked reduction in work productivity.
Misplacing or losing important items.
Frequent inability to remember friends or family member names.
Struggling to remember instructions or information from a book.
This is the stage where the individual may begin to have minor anxiety as the symptoms are now beginning to interfere with their life. It is at this stage of the disease people are encouraged to seek a clinical diagnosis.
At this stage, the sufferer begins to become socially withdrawn and has signs of personality and mood changes. Denial of the condition is common.
Decreased knowledge of current/or recent events.
Difficulty remembering things about one’s personal history.
Inability to handle finances, or to do any planning.
Recognizing people and faces becomes a struggle.
At this stage, patients will have no trouble with familiar faces and familiar locations, but often patients will avoid challenging situations to prevent stress and anxiety or to hide condition.
At this point my father would not give up his driver’s license, but gave up is car. He was relying more and more on my mother to remember people and names. His memories of his own life were being distorted. My brother took over my parent’s finances and was scheduling doctor’s appointments and ordering prescriptions. Perhaps the hardest change for all of us, was his change in temperament. He became aggressive, he unexpectedly would disagree with anything and at the same time gave little thought to what he said to people or how he said it. In general, he could become mean at times. He was in a nursing home now and occasionally was confused as to how and why he there, but he would forget being there was his idea. I wish we had known more about dementia at the time, it may have helped us to understand.
At this stage some assistance is required to carry out daily activities.
Inability to remember major details such as close family member’s names or home addresses and phone numbers.
Disorientation about time and place.
Trouble or inability to make decisions.
Forget basic information about themselves.
Although stage 5 can interfere with daily life styles, those with 5th stage dementia do not seem to need assistance with basic functions such as using the bathroom or eating. Most still have the ability to remember their name and the name of their spouse.
Entering stage 6, patients begin to forget the names of their spouse, their children or primary caregivers and in all likelihood will require full time care.
Obsessive behaviors and symptoms.
Anxiety, aggression and agitation.
Loss of will power.
Patients may begin to wander, have difficulty sleeping and in some cases will experience hallucinations.
Before my father’s passing, he was well into stage 6. He was having difficulties sleeping and was starting to have hallucinations. He at times had aggressive behavior and anxiety as well as obsessive behavior.
Along with the loss of motor skills, patients will progressively lose the ability to speak during the course of stage 7. Loved ones and caregivers will need to help the patient with walking, eating and use of the bathroom.
Most cases of dementia may be reversible. Sometimes dementia-like conditions may be caused by underlying conditions which may be treatable.
On the Dementia.org website they write: “The more aware you are of these steps, the quicker you will be able to react and seek help, either for yourself or for a loved one.”
For the many forms of dementia, is there anything we can do to help ourselves to lessen our chances of developing dementia? There are no guarantees but the following are suggestions which may help. Research suggest:
Stay physically Active
Stay socially active
Participate in mentally stimulating activities i.e. learn languages, continue education
Quit smoking and minimize drug use
Eat a healthy diet (research has found that a Mediterranean style diet is most beneficial)
Manage cardiovascular diseases
Dementia.org states: “These measures aren’t only for individuals who want to prevent dementia, these life style changes are also beneficial for those who are already diagnosed, as positive changes can slow the progression of dementia.”
One final comment for anyone, who, like myself, wondered, is dementia passed on through our DNA?
According to University Healthnews.com: The more family members you have who are affected by certain types of dementia, including Alzheimer’s, the greater your risk becomes. So, strictly speaking, is dementia hereditary?
Dementia statistics suggest that genetic background is certainly a factor – but not the only factor”.
Please Note: The article was written to inform and for awareness. SAIL is not a Healthcare provider, nor is any member of its staff. The information provided is not meant to be a substitute for diagnosis and treatment by a Physician, licensed professional, or therapist. Any information provided in this article is the opinions of the author and not that of the author’s employer or the employer’s staff.
In the past month or so school administrators and teachers have been contending with how to continue education programs for students with special needs. There are many questions associated with this topic and they entail multiple components, not just the educational aspects.
Special education has always been an interest of mine. I am not an expert by any stretch of the imagination and find the more I research and learn the more questions come to mind. Technology offers so many possibilities but there are many issues yet to be resolved. A good example of this is the problem of on line accessibility for all ranges of learning disabilities (LD). Technology alone cannot meet all of the needs, and many small, rural schools lack the community infrastructure for connectivity in outlying areas. In some cases, there may be budget constraints.
As the coronavirus spread and states began to shut down schools, many educators found themselves scrambling to find ways to complete the school year. As for the LD students, in an article on the Atlantic Website, Faith Hill reports: “For students with special needs-roughly 7 million in the U.S. ages 3 to 21-the coronavirus pandemic, and its attendant school closures, can be especially scary. At school, they get individualized attention from professionals who are trained in and deeply familiar with their unique ways of thinking, perceiving and processing.” Hill feels: “No amount of love and care at home can turn the average parent into a special-education teacher overnight. Nor can it enable them to practice occupational speech, or physical therapy-services that are provided in many schools.”
Parents who have had successful careers in areas other than education suddenly find themselves with the demanding task of maintaining their special needs child’s education. Homemakers, businesspersons, construction workers and factory workers with no psychology, speech therapy, physical therapy, or educational training suddenly find themselves as teachers at home. Working from home, in isolation, parents are asked to become special education teachers and wrestle with the dilemma trying to fill the gap of continuing their children’s education.
For many LD students using such online tools such as Zoom and Microsoft teams may not be accessible for a variety of reasons. Regarding this topic, Hill finds: “Students with disabilities often use assistive technology; for instance, a student with visual impairments might use screen-reader software to have text read aloud or a braille reader to read text themselves. But a lot of online platforms aren’t compatible with assistive technology-and even when they are, other problems frequently arise.”
During the extended shutdown many parents and special education teachers are worried about backslide or regression in academic progress. This occurrence already happens yearly, which Hill calls “melt of skills” or “summer side”.
Parents who have taken on the role of teacher for their children need helpful advice. Access to special education information at home seems to be sparse at best and if the family is not tech savvy or has no internet access, they may find themselves in a depressing, impossible position.
While looking for suggestions for this article, I asked for some advice from Chad Shippee, a principal of a small rural school in upstate New York. Mr. Shippee responded with a few pointers he shares with parents:
1. “Keep open lines of communication with any school personnel that your child worked with when school was in session. Resource, therapy, and counseling should ideally be available, even if done remotely. These professionals can also help with some suggestions on how to make things go smoothly at home.”
2. “Keep a structured schedule. Many students with disabilities work best with structure and know what to expect when one is followed.”
3. “Don’t be afraid to take a break, or pick and choose what you can and can’t do with your child. No schoolwork is worth the anxiety and stress that can impede on your home life with your child. Do what you can, and just do your best.”
Mr. Shippee also commented: “I see these as the big points. Especially number 1.”
There are a number of web-based articles providing some suggestions. For example, Theresa Harrington has written an interesting article on the Times-Standard website in which she provides five basic tips:
“Do not try to replicate school at home. Home-schoolers are not even really home-schooling right now because normally, our world is our classroom. Think about it as quarantine schooling.” Remember you are a parent, not a teacher. As Harrington goes on to explain: “It’s going to be messy. Don’t worry about it.” The majority are in the same boat, we are all trying to survive, and keeping money coming in during this pandemic is the priority, and Harrington realistically reminds us that during this time: “Academics may need to come second.”
“Be gentle with yourself, your kids, your partner, and your coworkers. This is unprecedented. Both parents should share in the duties, whether for homeschooling, childcare, or housework.” Harrington mentions concern about “women” in this situation “taking it all on.”
“Ask your children what they would like to learn. This is a wonderful opportunity to not just do worksheets. Do real life. Make a meal, make a bed, fold laundry, serve meals, clean up, do chores, and do repairs around the house. This helps parents and gives kids skills in gardening, sewing, and fixing things, along with reading, playing, inventing, building things, and singing, dancing, and experimenting.”
“Recognize that learning doesn’t just happen with a teacher or a book at a desk. It can happen anywhere. Children are learning even when they’re playing with Legos.” This brings up an interesting point (having children myself) why do Legos now come in pre-defined sets such as “Star Wars” themes or pre-designed boats or planes. Why not just throw away the directions and pictures, give them a box of Legos and let their imaginations, creativity and problem-solving skills go wild and develop. One may be surprised by what children using their own minds can come with. Another idea is to give a child some matchbox cars and a box of sidewalk chalk and watch what they do with it. I have watched my grandson spend all day drawing out city streets and parking lots on a section concrete. We need to look at things through their eyes, as Harrington points out: “You don’t have to teach your children everything.”
Be flexible. Learning doesn’t have to take place during regular school hours. If you’re staying home and working, maybe you can shift school work to weekends, evenings or afternoons.” Harrington also suggests: “Use the internet or games as a tool, but don’t feel guilty if you need to rely on them at times to get things done.”
To me, one of the best take-away from the majority of the information found for parents who in this crisis suddenly find themselves being a teacher, remember this is a crisis, you have to do what is necessary during this pandemic so just do the best you can.
In another blog article entitled, How to Homeschool Your Kids During the Pandemic, Claire Sasko provides 10 Tips:
“Use your teachers as your tutors”
“Lower your expectations”
“Start early in the day”
“Establish a structure”
“Give your kids snacks”
“Keep the little ones out of the room”
“Schedule free time after schoolwork, especially if your kids are ahead”
“Find online resources you trust”
“But don’t forget about books”
“And remember: You don’t always need to force online learning”
There are links to full versions of these articles and others listed at the end of this document.
Finally, although many schools and educators have been working on and preparing for an event like our present situation, there is still much to consider. Their efforts are a work in progress. Remember COVID-19 was sudden and we are all attempting to battle through it.
Technologies have made great progress and continue to make advances in special education. Not all of these tools are yet completely accessible, and broadband is still missing in many rural communities. Demographics are such that not all families have access to individual computers and if a parent now works from home, sharing a computer becomes a challenge in home teaching. Additionally, not all parents have the necessary skills or patience for the task; this opens the possibility for abuse at home. These areas continue to improve, but in the meantime, if you know someone without internet access, struggling with this topic, please share any portion of this information with them.
A Special Thanks to:
Chad Shippee, PreK-12 Principal, Bolton Central School for taking the time to provide suggestions and encouragement, which were a guide for the writing of this.